Still so thankful to JustinMcClureTV and all of our friends & family for helping put this message together. So .... are you registered yet, friends????? Share the link! Share the love!!!!
REGISTER HERE: http://kyriefoundation.dojiggy.com/
Thursday, August 2, 2012
Thursday, July 5, 2012
Thankful Thursday
Ah! So much to be grateful for today ...
If you haven't heard, registration is open and hopping for the 2012 Twilight Walk!! Spread the word! http://kyriefoundation.dojiggy.com Grateful for all those who are already forming teams, fundraising and sponsoring this incredible, and much-needed event to cure pediatric brain cancer!
Grateful for the brand, new fundraising event in St. Louis this year!
Grateful that children like Kyrie and Taya and Ethan and now little Ava are not lost in vain because of what you are doing to help. We're doing something and that's always better than doing nothing.
And grateful for this today:
What are you grateful for today?
If you haven't heard, registration is open and hopping for the 2012 Twilight Walk!! Spread the word! http://kyriefoundation.dojiggy.com Grateful for all those who are already forming teams, fundraising and sponsoring this incredible, and much-needed event to cure pediatric brain cancer!
Grateful for the brand, new fundraising event in St. Louis this year!
Grateful that children like Kyrie and Taya and Ethan and now little Ava are not lost in vain because of what you are doing to help. We're doing something and that's always better than doing nothing.
And grateful for this today:
What are you grateful for today?
Thursday, June 28, 2012
Thankful Thursday
SPIKE IT!
Today we're so thankful for the chutzpah it takes to try something new. Of course, we're no strangers to this concept. Every idea, every ask we endeavor is a brave step forward—a step that leads to the cure no matter what kind of response we get. But there are some really cool peeps in the world that really embrace this concept.
So thankful that Wendy and Susan are trying something new for sick kiddos around the globe, a new event in a new city with new people. Pretty courageous, eh?
SPREAD THE WORD TO ANYBODY YOU KNOW IN ST. LOU-EEE!
Today we're so thankful for the chutzpah it takes to try something new. Of course, we're no strangers to this concept. Every idea, every ask we endeavor is a brave step forward—a step that leads to the cure no matter what kind of response we get. But there are some really cool peeps in the world that really embrace this concept.
So thankful that Wendy and Susan are trying something new for sick kiddos around the globe, a new event in a new city with new people. Pretty courageous, eh?
SPREAD THE WORD TO ANYBODY YOU KNOW IN ST. LOU-EEE!
Thursday, June 7, 2012
Another big milestone!
Since the day a few people gathered in 2007 to talk about doing something big and good to fight children's brain cancer, there had been a yearning to financially help families going through the fight in addition to funding scientific research. It was a tough call, but we decided to work on the research arm of the Kyrie Foundation first because that's where the impending cure resides.
With each passing event and each family we met, we knew we wanted to grow our good. Lacie and Jordan can attest to how shocking and heartbreaking and staggering medical bills can be during the fight, especially at a time when one parent likely needs to be home from a job in order to care for the child.
We are so proud to announce a brand new event in a brand new city that will launch the Kyrie Foundation Family Assistance Fund!!!!!
Share the info with your St. Louis pals via Facebook!
Saturday, July 14
5:00 p.m
Firefighters Sports Complex
115 McMenamy Road
St. Peters, MO
A 6x6 co-ed tourney in round robin format followed by a single elimination tournament. Round robin matches consist of 2 games to 21, win by 2, max 25 points. Tournament matches will be best 2 out of 3 games to 25 points, win by 2, max 28 points. All teams guaranteed 4 matches. Tournament winner receive t-shirts. Divisions: Rec, Intermediate and Competitive. Food & bev available at complex (no outside food/drinks allowed).
$200/team of up to 8 players
Contact Wendy Wilkinson (316) 644-7475/wendy@kyriefoundation.org or Susie Berry (636)-284-4942 for registration and questions.
With each passing event and each family we met, we knew we wanted to grow our good. Lacie and Jordan can attest to how shocking and heartbreaking and staggering medical bills can be during the fight, especially at a time when one parent likely needs to be home from a job in order to care for the child.
We are so proud to announce a brand new event in a brand new city that will launch the Kyrie Foundation Family Assistance Fund!!!!!
Share the info with your St. Louis pals via Facebook!
Saturday, July 14
5:00 p.m
Firefighters Sports Complex
115 McMenamy Road
St. Peters, MO
A 6x6 co-ed tourney in round robin format followed by a single elimination tournament. Round robin matches consist of 2 games to 21, win by 2, max 25 points. Tournament matches will be best 2 out of 3 games to 25 points, win by 2, max 28 points. All teams guaranteed 4 matches. Tournament winner receive t-shirts. Divisions: Rec, Intermediate and Competitive. Food & bev available at complex (no outside food/drinks allowed).
$200/team of up to 8 players
Get your registration form here.
Contact Wendy Wilkinson (316) 644-7475/wendy@kyriefoundation.org or Susie Berry (636)-284-4942 for registration and questions.
Can you believe we get to grow like this?!? Spread the word! Hope to see you there!!
Thursday, May 17, 2012
Thankful Thursday
The Amazing Donna keeps on being amazing! Can you believe all of this prolific good work? There have been several special donors who have helped Donna with the expense of fabric, etc. They, too, have become part of this network for good. More amazingness. Easter Bunny & Eggbert's crew know exactly what I mean., how incredible it is when others step up to make this outreach possible. ;) And that's what I'm thankful for today: the courage to be amazing.
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| Special blanket for Mr. Blake. |
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| And one made especially for Mr. Daniel as well. |
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| For Elena in Wichita, KS. |
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| Precious Payton with her special blanket. |
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| Something for Jadyn to snuggle on the journey. |
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| A miraculous blanket for Ava. |
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| Chase with his blanket and a sweet note from his sweet grandma. |
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| A sweet blanket to help Isabel. |
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| Even Brayden's (a 5-month-old who's battled a neuroblastoma since 4 weeks after his birth) sister, Kadence, received a blanket! |
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| And 7-year-old Nebraskan Tyson got a special blanket. |
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| A blanket and prayers sent to Alexis, too. |
Saturday, April 7, 2012
The Day the Angels Came
The Day the Angels Came
a grandpa's prayer and poem for Kyrie Dawn
Wednesday, April 4, the day we heard of the explosive growth of the tumors
Alas! O, Lord what is it that I hear?
Is it Your angels coming for our Kyrie Dawn?
O, please Lord, keep them at bay--
If just for one more day.
Thursday, April 5, Holy Thursday
O, Lord, what is this I hear?
Is it that You need another little angel to be near?
O, please Lord, please Lord, don't take our Kyrie dear.
Could You please keep Your angels away,
and we could have her just one more day?
Friday, April 6, Good Friday
O, precious, sweet Jesus, is this the day?
No, no, dear Lord, not today--
This is Your day that You died to save.
Again, please Dear God, let us be selfish
and keep sweet Kyrie another day.
Saturday, April 7, Holy Saturday Easter Vigil
Thank you dear God in heaven
for yet another precious day--
For we all know things will be done your way.
Little Kyrie Dawn is fighting so very hard--
Yesterday she three her ball three times
till her tiny arm got tired.
Angel of God, my guardian dear,
To whom God's love entrusts her here,
Ever this day be at her side
To light, to guard, to rule to guide. Amen.
Sunday, April 8, Easter Sunday
Dear God in Heaven, Your angels came last night,
As we all knew that someday they might.
They came around the hour of seven
to take our precious one to her
special place in heaven.
Sweet Jesus, we know that you, too, love the little ones,
so to You we give You our little Kyrie Dawn--
And in the end, it is always Your will that will be done.
Amen.
Love,
Papa
originally published April 7, 2007
a grandpa's prayer and poem for Kyrie Dawn
Wednesday, April 4, the day we heard of the explosive growth of the tumors
Alas! O, Lord what is it that I hear?
Is it Your angels coming for our Kyrie Dawn?
O, please Lord, keep them at bay--
If just for one more day.
Thursday, April 5, Holy Thursday
O, Lord, what is this I hear?
Is it that You need another little angel to be near?
O, please Lord, please Lord, don't take our Kyrie dear.
Could You please keep Your angels away,
and we could have her just one more day?
Friday, April 6, Good Friday
O, precious, sweet Jesus, is this the day?
No, no, dear Lord, not today--
This is Your day that You died to save.
Again, please Dear God, let us be selfish
and keep sweet Kyrie another day.
Saturday, April 7, Holy Saturday Easter Vigil
Thank you dear God in heaven
for yet another precious day--
For we all know things will be done your way.
Little Kyrie Dawn is fighting so very hard--
Yesterday she three her ball three times
till her tiny arm got tired.
Angel of God, my guardian dear,
To whom God's love entrusts her here,
Ever this day be at her side
To light, to guard, to rule to guide. Amen.
Sunday, April 8, Easter Sunday
Dear God in Heaven, Your angels came last night,
As we all knew that someday they might.
They came around the hour of seven
to take our precious one to her
special place in heaven.
Sweet Jesus, we know that you, too, love the little ones,
so to You we give You our little Kyrie Dawn--
And in the end, it is always Your will that will be done.
Amen.
Love,
Papa
originally published April 7, 2007
Thursday, April 5, 2012
Thankful Thursday
I've been grateful for this before, but today I'm immensely grateful for time. Whether it's fast or slow, the time to experience this crazy thing called life is alway remarkable.
It's this time of year that I am most aware of time, especially time that has past. In some ways I'm proud of this time, what loss built in the last five years for families everywhere. Moreover, I'm awash again in questions and grace-filled sorrow. I still look at Jordan and Lacie's photos of Kyrie and weep. Then I start wondering "what if" ... and that never helps.
I look around at the friends that continue to stand by the cause and am grateful anew for their unconditional giving. Such a beautiful thing.
I think of this time five years ago, and I still feel the shreds of confused anger.
I look at Kyrie's brothers, and they make me giggle so much.
I meet new people who want to help raise awareness for the foundation, and I'm a puddle of gratitude.
Most of all, this time as taught me to remind myself to "work it for good." That's one of the big gifts from the last five years. Whatever this situation, the misunderstanding, the question, I know that His time works it all for good.
Easter is nearly upon us. And while I will sit amidst another year of little girls in frill dresses, I will know that Easter makes it possible for all of us to be together again. This is not the end.
After all, it's not about how much time you have; it's about how you use it, right?
What are you thankful for today?
It's this time of year that I am most aware of time, especially time that has past. In some ways I'm proud of this time, what loss built in the last five years for families everywhere. Moreover, I'm awash again in questions and grace-filled sorrow. I still look at Jordan and Lacie's photos of Kyrie and weep. Then I start wondering "what if" ... and that never helps.
I look around at the friends that continue to stand by the cause and am grateful anew for their unconditional giving. Such a beautiful thing.
I think of this time five years ago, and I still feel the shreds of confused anger.
I look at Kyrie's brothers, and they make me giggle so much.
I meet new people who want to help raise awareness for the foundation, and I'm a puddle of gratitude.
Most of all, this time as taught me to remind myself to "work it for good." That's one of the big gifts from the last five years. Whatever this situation, the misunderstanding, the question, I know that His time works it all for good.
Easter is nearly upon us. And while I will sit amidst another year of little girls in frill dresses, I will know that Easter makes it possible for all of us to be together again. This is not the end.
After all, it's not about how much time you have; it's about how you use it, right?
What are you thankful for today?
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